Life with a special needs child

Isaiah 55:8-11New International Version (NIV)

8 “For my thoughts are not your thoughts, neither are your ways my ways,” declares the Lord.9 “As the heavens are higher than the earth, so are my ways higher than your ways and my thoughts than your thoughts.10 As the rain and the snow come down from heaven, and do not return to it without watering the earth and making it bud and flourish, so that it yields seed for the sower and bread for the eater,11 so is my word that goes out from my mouth: It will not return to me empty, but will accomplish what I desire and achieve the purpose for which I sent it.
How is life with a special needs child ? It’s not easy, but you get used to it and you begin to accept things as they are. You learn to live and enjoy every moment, every cm in the head circumference, you are happy for every little progress he makes, but the biggest joy is when you see his smile and his love for you!

After weeks of crying I noticed how everyone around me continued their normal life but our life took a 180 degrees turn. You realize that all material things have no value at all, they are all in vain. You have a nice house and everything you need … when all you want is health for your child. In time, God heals your heart and changes your perspective.

You start to cling onto His promises and His Word, because God and the love and happiness that Josua has for us are the only things that give us strength to move forward to write the story that He had prepared. God has much greater toughts than ourselves, for our lives.

Our daily life has found its rhythm, Josua’s condition has become the new normal for us. School, kindergarten, physiotherapy, osteopathy, work, appointments to various doctors, we never get bored and are on the run all week.

Josua now has 7.700 g, 74 cm and 41.5 cm head circumference and we are glad that he turns occasionally from belly to his back, which is a breakthrough for him. When we give him a toy in his hand, he is curious and begins to feel it. Now he has a very ugly cough again and is on antibiotics, but with God’s help he will get over it.

Over time, you learn not to put to heart everything the doctors say. At first it was hard , when some doctors had the attitude that everything is lost, when they look at you with pity and can not say anything concrete, they give you the feeling that they have abandoned your baby! It’s hard in these moments to stay positive and keep your eyes fixed on His promises, but with His help it is possible.
Psalm 94:17-19 New King James Version (NKJV)

17 Unless the Lord had been my help,My soul would soon have settled in silence.18 If I say, “My foot slips,”Your mercy, O Lord, will hold me up.19 In the multitude of my anxieties within me,Your comforts delight my soul.

It’s sad when strangers look at Josua and you see in their eyes that they wonder what he has, but do not dare to ask! It’s a process to have the freedom to tell them, That he does not see and all the other things without being discouraged, remaining convinced that this is His plan.
The time comes when You feel powerless and you realise that you can only have peace if you fully trust God. You reach a certain point when you leave aside your fears of the unknown and will start relying on faith. I don’t want the problems in our life take away our passion for Jesus! I want to look at the positive side of things because there are kids with even worse diagnostics than Josua. Ups, downs and fear will come all the time but we trust and lay all our worries in His hand and He will care for all!

We are convinced that Josua’s life will bear fruit and that in time people will learn to look at him through His eyes and not with eyes full of pity. In the meantime we will go forward with God.

Joshua 1:9New International Version (NIV)

9 Have I not commanded you? Be strong and courageous. Do not be afraid; do not be discouraged, for the Lord your God will be with you wherever you go.”



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