Our Story

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Matthew 28:5-9New Living Translation (NLT)

5 Then the angel spoke to the women. “Don’t be afraid!” he said. “I know you are looking for Jesus, who was crucified. 6 He isn’t here! He is risen from the dead, just as he said would happen. Come, see where his body was lying. 7 And now, go quickly and tell his disciples that he has risen from the dead, and he is going ahead of you to Galilee. You will see him there. Remember what I have told you.”8 The women ran quickly from the tomb. They were very frightened but also filled with great joy, and they rushed to give the disciples the angel’s message. 9 And as they went, Jesus met them and greeted them. And they ran to him, grasped his feet, and worshiped him.

I spent so much time thinking whether to write this blog or not.

When I read this passage from the Bible, I realized that God chose these women to go and bring the news to the disciples.God chose them to bring the news and they left with fear, but with joy!
I’m starting this blog with fear, thinking of what some people might have to say, but also with great joy, so others can see how great God is in any situation.

Even if God doesn’t change the circumstances and problems in our lives, He has changed our hearts to these problems.
I’m not saying it’s not hard, it’s often very difficult and we feel that we have no power physically and emotionally. There are moments when you start to doubt,times when you want to cry, but most importantly, there is that time when God brings us encouragement and consolation.

I created this blog because I want to share our life, our story and our journey with Josua.Hopefully God will use his story and ours, to touch lives and encourage others who are going through the same thing.

It all started in June when I found out I was pregnant! We were very happy and because it was already the third pregnancy we had the feeling that the weeks were flying by. From the beginning God set deep in my heart the feeling that Josua will be special, that he will be a fighter for His kingdom. (Josua- means God is my salvation).
The weeks were passing by and I started having a strange feeling, like something’s wrong, but with each visit to the doctor everything was ok,.
At twenty weeks things began to change! Looking closer to the brain, the doctor saw that the ventricles are enlarged and that his head was smaller than it should . I felt everything around me collapse … and yet … deep in my heart I knew this moment would come. I realized that by the anxiety that I had, God tried to prepare me for what followed.
After this news, they began a series of tests, ultrasounds, assumptions … But nobody knew and nobody could say exactly what it is or how it will affect Josua.On February 12th 2016, our little miracle was born. 3.320 g; 49 cm and 33 cm head.He had difficulties to adapt, he didn’t like to be touched and has not opened his eyes at all for three weeks. He stayed Five days in the NICU while I was in the room alone, without my baby.My feelings oscillated between joy and sadness.

When we went home from the hospital Josua received the diagnostic microcephaly, muscle weakness, and microophtalmus ,microcorneea. ( behind one eye he has a malformation that goes up into the brain)

After 2 weeks we went to an ophthalmologist where doctors said he will not see at all with one eye and with the other, he will only distinguish light and dark. Because the head is too small, we do not know how it will affect him mentally. Muscle weakness … we do not know yet how it will affect him, but he is 8 months old, and he can’t hold his head up and can’t sit yet . We are doing daily physiotherapy with him and we are noticing a slight improvement but it’s a slow process.

He was tested for CMV, Zika, cystic fibrosis, trisomy 18, 9, and 13. We are thankful that he has none of these,however doctors assume that there is something genetic and we are currently expecting the genetic results.

At the beginning we were afraid, we were panicking, we asked thousands of questions thinking about the future. How will it be? What are we going to do ? I cried for weeks asking God why? Why us? and searched people going through the same thing.

I want to thank everyone who prayed for us. Your prayers and support mean a lot to us! I had a time when I could not pray, but other people and our amazing church carried us in their prayers. Thank you enormously for that!

At the moment it is going very well. Josua is a very gentle, happy and loving child! He already differentiates our voices and enjoys when he hears us. He is happiest when Mommy, Daddy or his big brothers play and snuggle with him!

We are convinced that God has a purpose for everything. In eight months Josua brought more people on their knees than others in a life. We love him so much!

We believe in an almighty God who performs miracles and we are praying for a miracle in Josua’s life to make him healthy.
Will God heal him? We do not know, but we know that His plan is perfect as it is, whatever He will decide.
In any situation, any problem, we can cry about it or glorify Him. We want to glorify Him.

We didn’t choose this to be our story, but God chose us. Besides all the worries and hardships, we are honoured to be Josua’s parents! His presence fills our home with love beyond measure.

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